Podróż przez epilepsję - Program treningowy umiejętności poznawczych dla nastolatków z epilepsją
Epilepsy Journey-An Executive Functioning Intervention for Teens With Epilepsy
W skrócie
Badanie sprawdza, czy internetowy program o nazwie Epilepsy Journey pomaga nastolatkom z epilepsją lepiej radzić sobie z pamięcią, organizacją i planowaniem. Młodzież losowo trafia do jednej z czterech grup: otrzymuje zarówno moduły internetowe i spotkania z terapeutą, tylko moduły, tylko terapię, lub standardowe leczenie. Uczestnicy odbywają zajęcia przez 14 tygodni, a efekty badane są przez 66 tygodni za pomocą testów sprawdzających umiejętności poznawcze i jakość życia.
Oryginalny opis (angielski)
The goal of this multi-site clinical trial is to determine the effectiveness of two components of a web-based intervention (Epilepsy Journey) to improve executive functioning in adolescents with epilepsy. The two components include web-based modules and problem-solving telehealth sessions with a therapist focused on executive functioning. This trial aims to answer the following questions:
1. Which components of Epilepsy Journey (web-based modules or telehealth sessions with a therapist) are essential for improving executive functioning in adolescents with epilepsy?
2. Which components of Epilepsy Journey (web-based modules or telehealth sessions with a therapist) are essential for improving quality of life in adolescents with epilepsy?
Participants will be randomly assigned to one of four groups: 1) Epilepsy Journey web-based modules and telehealth sessions, 2) Epilepsy Journey web-based modules only, 3) telehealth sessions with a therapist only, or 4) treatment as usual.
Participants will:
* Independently review Epilepsy Journey web-based modules focused on executive functioning skills (\~15-30 minutes) and/or have weekly telehealth sessions (\~30-45 minutes) with a therapist for 14 weeks.
* Complete measures of executive functioning (parent and teen-report) and quality of life (teen-report) at the start of the study, 14-, 26-, and 66- weeks after randomization. The NIH toolbox will be completed at the start of the study and 26-weeks after randomization. Additional measures will also be collected.