Wiedza, świadomość i zachowania rodziców wobec dzieci z epilepsją w regionie Rijadu, Arabia Saudyjska: badanie przekrojowe
Parents' knowledge, awareness, and practices towards children with epilepsy in the Riyadh Region, Saudi Arabia: A cross-sectional study
W skrócie
Badanie wykazało, że wielu rodziców w Rijadzie ma niedostateczną wiedzę na temat epilepsji u dzieci - część z nich błędnie uważa ją za uleczalną lub przypisuje ją opętaniu. Chociaż rodzice rozpoznają podstawowe objawy epilepsji i wierzą w możliwości edukacyjne dzieci chorych, brakuje im wiedzy o leczeniu, zwłaszcza chirurgicznym, a jednocześnie istnieje duży wstyd społeczny związany z tą chorobą. Autorzy podkreślają potrzebę edukacyjnych programów dla społeczności, aby poprawić zrozumienie epilepsji, nauczyć udzielania pierwszej pomocy i zmniejszyć społeczne stygmatyzowanie tej choroby.
Oryginalny abstract (angielski)
BACKGROUND: Epilepsy (EP) is among the most common neurological disorders in children globally, with a notably high prevalence in Saudi Arabia, partly due to elevated consanguinity rates. Despite substantial research, limited data exist on parental knowledge, awareness, and practices (KAP) regarding childhood epilepsy in Riyadh. This study assessed parents' understanding and attitudes towards epilepsy. METHODS: A cross-sectional survey was conducted among 455 parents residing in Riyadh using a newly developed 27-item online questionnaire. Statistical analysis was performed using SPSS, with significance at < 0.05. RESULTS: Many parents lacked sufficient knowledge about epilepsy. About 37.6% believed epilepsy was curable, and 25.85% attributed it to possession by demons. Convulsions (38.54%) and loss of consciousness (31.67%) were the most recognized symptoms. Awareness of treatment options was low, with only 21.5% knowing about surgical interventions. While 64.2% of parents believed children with epilepsy could succeed academically and professionally, 51.9% preferred not to disclose the diagnosis to friends and family. Regarding practices, 62.6% had witnessed a seizure, but 67% reported fear when encountering one. First-aid responses varied: 31.7% prioritized removing the patient from danger, while 23.7% would call an ambulance. CONCLUSION: Parental knowledge and awareness remain moderate, with persistent misconceptions and social stigma. Targeted educational programs are urgently needed to correct misunderstandings, promote effective first-aid responses, and foster community support for children with epilepsy. Enhancing public awareness could significantly improve epilepsy management and outcomes for affected families.