Świadomość zdrowotna pacjentów z epilepsją: przegląd obecnego stanu, czynniki wpływające i kierunki na przyszłość
Health literacy in patients with epilepsy: a narrative review of current status, influencing factors, and future directions
W skrócie
Epilepsja to częsta choroba neurologiczna, która negatywnie wpływa na zdrowie fizyczne i psychiczne pacjentów. Niski poziom świadomości zdrowotnej wiąże się z gorszym stosowaniem leków, częstszymi napadami i gorszą jakością życia. Badanie przeanalizowało dotychczasowe wyniki badań, aby wskazać główne czynniki wpływające na świadomość zdrowotną (takie jak wiek, edukacja, funkcje umysłowe, wsparcie rodziny i dostęp do opieki medycznej) oraz pokazać, jak interwencje złożone mogą poprawić umiejętności samoopiekuńcze pacjentów z epilepsją.
Oryginalny abstract (angielski)
Epilepsy is a common chronic neurological disorder that imposes a significant burden on patients' physical and mental health, and low health literacy is closely associated with poor medication adherence, increased seizure frequency, and reduced quality of life in patients with epilepsy. Despite the growing number of studies on health literacy among patients with epilepsy, there is a lack of a comprehensive narrative summary that systematically integrates the factors influencing health literacy and corresponding intervention strategies, hindering the formulation of targeted health management measures. This narrative review aims to summarize current research on health literacy among patients with epilepsy, clarify the key influencing factors, and systematically sort out the common intervention strategies. We searched databases including PubMed, Embase, and Web of Science, screening Chinese and English studies published from the inception of the databases through March 31, 2026, and included studies focusing on epilepsy patients' health literacy levels, influencing factors, and intervention effects. The results show that individual characteristics (for example, age, education level, cognitive function), family and social support, and healthcare resource accessibility are the main factors affecting health literacy in epilepsy patients, and comprehensive intervention measures can effectively improve patients' health literacy and self-management ability. This review also highlights the limitations of existing studies, such as the lack of standardized assessment tools and long-term follow-up data, and proposes feasible directions for future research. In conclusion, this narrative review provides a comprehensive reference for clinical medical staff to formulate targeted health literacy intervention strategies for patients with epilepsy and promotes the standardized development of epilepsy health management.